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POINT OF LIFE

POINT OF LIFE for Ukrainian children with hematological malignancies

The Project’s goal is to create a Reference Laboratory and National Register of Bone Marrow Donors to save lives of children suffering from blood cancer in Ukraine.

The Project is aimed at solving the following problem. Every year up to 550 new cases of hematological malignancies in children are registered in Ukraine. About 300 children with such diseases need treatment through bone marrow transplant and only 20% of them have a related donor and can receive such treatment in Ukraine. Every year hundreds of children remain without hope for recovery because transplantations from unrelated donors are performed only abroad and cost from 100 thousand US dollars to 350 thousand Euro!

The solution suggested by the Project: to create a Reference Laboratory for diagnostics of hematological malignancies in children and National Register of Hematopoietic Stem Cell Donors on the basis of the Center of Pediatric Oncohematology of the National Specialized Children’s Hospital for Mother and Child’s Care "OKHMATDYT" (Kyiv, Ukraine).

The structure of the Reference laboratory includes following departments: department of hematological and cytomorphochemical investigations, department of immunocytology investigations, cytogenetics technology department, department of molecular biology investigations, tissue typing and cryobiology, statistical department.

Implementation of the "Point of Life" Project means:

- Modern diagnostics laboratory for hematological malignancies in children from all over Ukraine;
- Tissue typing of healthy people – potential stem cell donors;
- Filling up and functioning of the Register of Bone Marrow Donors, its registration in the international system;
- Beginning to perform bone marrow transplants from unrelated donors in Ukraine.

Project results. Bone marrow transplants from unrelated donors for Ukrainian children with blood cancer will now become possible in Ukraine owing to the creation of the Laboratory and National Register of the bone marrow donors. The opening of the Laboratory took place on November of 2009. The results of the tests performed by the Laboratory make it possible to create the Register of the hematopoietic stem cell donors. This way by the end of 2010 bone marrow transplants from unrelated donors will become possible in Ukraine.

Overall budget of the project is 8 million UAH.

Partners of the project:

Health Ministry of Ukraine
National Specialized Children's Hospital "OKHMATDYT"
All-Ukrainian Charity Foundation "Krona"
The "NIKO" Group of Companies
Kyiv Club Leviv
Ernst&Young

Media partners of the project: ICTV, information and analytical portal CSR Journal, LLC "PressCom"

Accomplishments

- Creation of the Reference laboratory for hematological malignancies diagnostics and the staffing table were approved by order of the Health Ministry of Ukraine from February 9, 2009, #34-0.

- Reconstruction of the 28 rooms for the four departments of the Reference laboratory was completed. The overall area of the laboratory is 238 square meters. The cost of the reconstruction is 651 thousand UAH. Expences for the reconstruction of the laboratory were completely financed by the Charity Foundation "Krona";

- The "Krona" Foundation purchased laboratory equipment – DNA sequencer – for the department of molecular biology, tissue typing and cryobiology, for the amount of 1.1 million UAH;

- Health Ministry of Ukraine provided funds for buying medical furniture and equipment for the department of molecular biology investigations;

- The "Krona" Foundation started a campaign for raising funds from business companies, and individuals for equipping of the laboratory. Collection of charitable donations from individuals through charity boxes is accomplished with help of the "NIKO" Group of Companies, its partners and dealers in 20 regions; business center "Podil-Plaza", restaurant "L'Accente", Ivan Franko Drama Theater, fitness center "Aquarium". Charitable donations from individuals were collected in the amount of 32 911 UAH.

- Information campaign was started for attraction of potential bone marrow donors;

- Health Ministry of Ukraine created a service that will deal with registering the bone marrow donors.

Сплачувати рахунки через Інтернет або мобільний —
швидко, зручно та безпечно! РА АвтоБиз UCF "Krona": BC "Dnipro-Plaza",
Naberezhno-Khreshchatytska Str.,Berth #4, 04070, Kyiv, Ukraine

Account #2600515392, JFC "Raiffeizen Bank Aval", MFO 300335, Reg. #34818334
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